It's almost 8pm on a Saturday night, so the stars would be peeking
through if it weren't so cloudy. It's surprisingly warm, and breezy the way it
was one night on top of a Dominican hotel. It's Homecoming in our University
city so there are drunk 'kids' heading towards the bus stops, screaming and
laughing, caring very little about football I'm sure. And I'm sitting on a
bench in the park, with my iTunes, a juice box, and the most spectacular baby,
convincing myself that we have to look at it all through a half-full glass.
I've been sick these last few weeks. Really sick. The throwing up, the diarrhea, the awesome pain in my lower abdomen, the zero energy. I'm going to be honest, I've been meaning to type about this since Monday, but the tears start stinging my eyes as soon as I start.
Many people smile and tell you that pregnancy usually cures Endometriosis, and each time I appreciate their hopefulness. It's not true though. Being pregnant suspends your hormonal cycle, so new Endometriosis stops growing, which is nice! If you're lucky though, like me, and there's already Endometriosis in there before you get pregnant, it's possible you'll feel it throughout the pregnancy. Then it starts again, once things regulate after baby is born.
About 3 weeks ago I started to get nauseous again, not just any kind of nauseous, but that familiar nauseous. And it terrified me. I recently pushed a baby out of my vagina, after my hips dislocated, and a 'sore tummy' terrifies me still. But it isn't the actual nausea that scares me, it's not even the fear of impending vomiting. I am terrified of being sick again, being THAT sick. I am terrified of being that sick, and feeling like a terrible mother because of it. So, after one too many minutes of listening to Boden cry while being stuck in the bathroom, I made an appointment with my OB/surgeon this past Monday, during which my heart was a little broken.
A little over a year ago, when my Endometriosis had hit a new low, I told him that I just wanted to get it all over with, and get it all out. I wanted a full hysterectomy, the only 'cure' for Endometriosis. He agreed though, to just preform another Laporoscopy, and give us some time to try to get pregnant first. That 'course of treatment' lead to the craziest, busiest, loveliest summer season. My (now) husband proposed to me the night I got home after surgery, and we'd decided that we should get married before having a baby, or else we'd never want to spend our time/money on a wedding once we had a kid to care for. Since we needed to be pregnant as soon as possible (to avoid, as much as possible, my Endometriosis growing back), we decided to get married barely 4 months later. It's what made sense at the time! And only a few weeks after that, we were pregnant! And it was an awful pregnancy (7 out of 9 months anyways), but it was what we wanted, and during the really bad days, I reminded myself that I was going to have this glorious baby at the end of it all, and that I'd get to have a hysterectomy not too long afterwards. My Endometriosis would be all over, and I'd just spend the rest of my life being a normally healthy mom, and wife!
It turns out, apparently, it is actually viewed as quite unethical to preform a radical hysterectomy on a 28 year old, if she isn't dying. And just FEELING like you're dying doesn't count. I know that there are plenty of 'cons' to be considered when opting for such a serious surgery, but I was still shocked when my doctor told me he couldn't do it. Because that was the whole point! Wasn't it? Get married, and have a baby even though it wasn't actually something we'd planned on doing for a few years, so that I could have this surgery before Endometriosis completely ruined my life?! That's what I thought any ways.
Instead, I'm back where I was before this whirlwind. And I swear, it has been a beautiful whirlwind, that has never been lost on me, but I didn't expect to end up here again. Here meaning, trying different birth controls, increasing the dose of my other medications, and just waiting to see how it goes. Waiting, and hoping, that maybe this time things will magically be better! During the appointment, I agreed to it, to the waiting and seeing. Because you trust the medical professionals, and because deep down of course I'd rather things just get better on their own, and not NEED another surgery. Of course!
This morning though, I woke up sick. It's something I hadn't experienced since before my last Laporoscopy. I mean, morning sickness is waking up sick, but that's different. That's because there's a baby in there! It had been over a year since I woke up, no chance to stretch or catch my breath before feeling absolutely sick, and without a baby at the root of it. And I lost it a little bit.
In all fairness, my period had shown up again (my first period in almost 2 years), and 'that' week makes Endometriosis feel 100xs worse. But I sat in my bathroom, stuck on my toilet, just crying. I was sad. And remarkably pissed off. And beyond thankful that it's the weekend, and my husband could be with the baby. But the weekend will end, and it'll just be me at home again, trying desperately to care for my baby the way he deserves to be cared for, when feeling this sick used to mean Gravol and Toradol, and Ativan, and curling around my heating pad in the dark. And I don't say any of that in hopes of sympathy. Even if it wasn't initially part of our short-term plans, being a mother, being at home all day with my baby while my most wonderful husband is at work providing for us, is all I've ever wanted! It has been more wonderful, these last 11 weeks, then I could have ever dreamed. But it is very scary to think that as far as being sick goes, this is just the beginning. It can't get better on it's own, it can only get worse. And that is daunting. That is really hard to imagine. When I remember the days I spent lying on my bathroom floor, feeling like I was dying, sometimes hoping I was dying, it is hard to imagine looking after a baby while feeling like that again. It is really hard not to feel terrified, every time I've had to take a Gravol, or extra Tylenol over the last few days, because that place was such a scary place, and I am nowhere near ready to be there again.
In this very moment, there isn't a whole lot I can do, unfortunately. I'm going to hope that once this period is over I'll feel some relief, and I just have to hope that next month it's not as bad. I have to learn to be active, and productive even as the Gravol drowsiness sets in. I need to do some SERIOUS research (instead of spending my few free minutes Instagramming...and blogging, lol) on all that a hysterectomy entails, and try to find some younger women who have been through it. And then I need to decide what I want, and do whatever it takes to get it. Endometriosis has stolen over 6 years of my life.. I have a new life now, and it can't have this too.
Most importantly, I need to concentrate on the 'half' of this situation that is still 'full'. This disease might be chugging out of my little glass, but what remains is still beautiful, and that is what's most important.
For starters, there is the fact that so many women plagued by Endometriosis will not get the beautiful baby. I have this terrible illness, but I am one of the lucky ones, regardless. And I must say, no amount of Ativan or Gravol or pain killers can make me feel as better as holding that perfect teeny body does. He makes my soul feel better, and the soul runs deeper then any disease.
The other thing that keeps my glass from completely drying up, is knowing I'm in such good hands. I will never enjoy the fact that I've had to be taken care of, but I am so lucky to be in such close proximity to such wonderful caretakers. I know that most people think it's ridiculous to live with my dad, but knowing he's still so close as I start to get sick again, is only one of many reasons I'm glad this is our home. And then there's my husband, who over the years has learned exactly what I need when I need it. Just the little things. Knowing that he will be by my side, does make this disgusting process a little less scary.
They say a baby won't fix a relationship, and I entirely stand behind that, but it does make an already loving relationship even greater. Like, it is the greatest. I feel so proud to just walk around the mall with him, and our stroller. Even holding hands just feels greater. Whether I have Endometriosis or not, we get to spend the rest of our lives together, both as a couple and as a family. We get to watch as Boden brings SO much joy to all of our loved ones. And we never have to worry about him being sick, the way I am. Knowing that Boden can never have Endometriosis eases my heart so greatly, knowing what my being sick has done to my parents.
Seeing your child suffer, is far worse then suffering yourself, so I should consider myself lucky, really. I'm not on the bathroom floor yet...I am surrounded by love and people who want to help fix me...I magically have the most beautiful baby, and I never have to watch him suffer through this disease. My glass is actually more then half full.
I've been sick these last few weeks. Really sick. The throwing up, the diarrhea, the awesome pain in my lower abdomen, the zero energy. I'm going to be honest, I've been meaning to type about this since Monday, but the tears start stinging my eyes as soon as I start.
Many people smile and tell you that pregnancy usually cures Endometriosis, and each time I appreciate their hopefulness. It's not true though. Being pregnant suspends your hormonal cycle, so new Endometriosis stops growing, which is nice! If you're lucky though, like me, and there's already Endometriosis in there before you get pregnant, it's possible you'll feel it throughout the pregnancy. Then it starts again, once things regulate after baby is born.
About 3 weeks ago I started to get nauseous again, not just any kind of nauseous, but that familiar nauseous. And it terrified me. I recently pushed a baby out of my vagina, after my hips dislocated, and a 'sore tummy' terrifies me still. But it isn't the actual nausea that scares me, it's not even the fear of impending vomiting. I am terrified of being sick again, being THAT sick. I am terrified of being that sick, and feeling like a terrible mother because of it. So, after one too many minutes of listening to Boden cry while being stuck in the bathroom, I made an appointment with my OB/surgeon this past Monday, during which my heart was a little broken.
A little over a year ago, when my Endometriosis had hit a new low, I told him that I just wanted to get it all over with, and get it all out. I wanted a full hysterectomy, the only 'cure' for Endometriosis. He agreed though, to just preform another Laporoscopy, and give us some time to try to get pregnant first. That 'course of treatment' lead to the craziest, busiest, loveliest summer season. My (now) husband proposed to me the night I got home after surgery, and we'd decided that we should get married before having a baby, or else we'd never want to spend our time/money on a wedding once we had a kid to care for. Since we needed to be pregnant as soon as possible (to avoid, as much as possible, my Endometriosis growing back), we decided to get married barely 4 months later. It's what made sense at the time! And only a few weeks after that, we were pregnant! And it was an awful pregnancy (7 out of 9 months anyways), but it was what we wanted, and during the really bad days, I reminded myself that I was going to have this glorious baby at the end of it all, and that I'd get to have a hysterectomy not too long afterwards. My Endometriosis would be all over, and I'd just spend the rest of my life being a normally healthy mom, and wife!
It turns out, apparently, it is actually viewed as quite unethical to preform a radical hysterectomy on a 28 year old, if she isn't dying. And just FEELING like you're dying doesn't count. I know that there are plenty of 'cons' to be considered when opting for such a serious surgery, but I was still shocked when my doctor told me he couldn't do it. Because that was the whole point! Wasn't it? Get married, and have a baby even though it wasn't actually something we'd planned on doing for a few years, so that I could have this surgery before Endometriosis completely ruined my life?! That's what I thought any ways.
Instead, I'm back where I was before this whirlwind. And I swear, it has been a beautiful whirlwind, that has never been lost on me, but I didn't expect to end up here again. Here meaning, trying different birth controls, increasing the dose of my other medications, and just waiting to see how it goes. Waiting, and hoping, that maybe this time things will magically be better! During the appointment, I agreed to it, to the waiting and seeing. Because you trust the medical professionals, and because deep down of course I'd rather things just get better on their own, and not NEED another surgery. Of course!
This morning though, I woke up sick. It's something I hadn't experienced since before my last Laporoscopy. I mean, morning sickness is waking up sick, but that's different. That's because there's a baby in there! It had been over a year since I woke up, no chance to stretch or catch my breath before feeling absolutely sick, and without a baby at the root of it. And I lost it a little bit.
In all fairness, my period had shown up again (my first period in almost 2 years), and 'that' week makes Endometriosis feel 100xs worse. But I sat in my bathroom, stuck on my toilet, just crying. I was sad. And remarkably pissed off. And beyond thankful that it's the weekend, and my husband could be with the baby. But the weekend will end, and it'll just be me at home again, trying desperately to care for my baby the way he deserves to be cared for, when feeling this sick used to mean Gravol and Toradol, and Ativan, and curling around my heating pad in the dark. And I don't say any of that in hopes of sympathy. Even if it wasn't initially part of our short-term plans, being a mother, being at home all day with my baby while my most wonderful husband is at work providing for us, is all I've ever wanted! It has been more wonderful, these last 11 weeks, then I could have ever dreamed. But it is very scary to think that as far as being sick goes, this is just the beginning. It can't get better on it's own, it can only get worse. And that is daunting. That is really hard to imagine. When I remember the days I spent lying on my bathroom floor, feeling like I was dying, sometimes hoping I was dying, it is hard to imagine looking after a baby while feeling like that again. It is really hard not to feel terrified, every time I've had to take a Gravol, or extra Tylenol over the last few days, because that place was such a scary place, and I am nowhere near ready to be there again.
In this very moment, there isn't a whole lot I can do, unfortunately. I'm going to hope that once this period is over I'll feel some relief, and I just have to hope that next month it's not as bad. I have to learn to be active, and productive even as the Gravol drowsiness sets in. I need to do some SERIOUS research (instead of spending my few free minutes Instagramming...and blogging, lol) on all that a hysterectomy entails, and try to find some younger women who have been through it. And then I need to decide what I want, and do whatever it takes to get it. Endometriosis has stolen over 6 years of my life.. I have a new life now, and it can't have this too.
Most importantly, I need to concentrate on the 'half' of this situation that is still 'full'. This disease might be chugging out of my little glass, but what remains is still beautiful, and that is what's most important.
For starters, there is the fact that so many women plagued by Endometriosis will not get the beautiful baby. I have this terrible illness, but I am one of the lucky ones, regardless. And I must say, no amount of Ativan or Gravol or pain killers can make me feel as better as holding that perfect teeny body does. He makes my soul feel better, and the soul runs deeper then any disease.
The other thing that keeps my glass from completely drying up, is knowing I'm in such good hands. I will never enjoy the fact that I've had to be taken care of, but I am so lucky to be in such close proximity to such wonderful caretakers. I know that most people think it's ridiculous to live with my dad, but knowing he's still so close as I start to get sick again, is only one of many reasons I'm glad this is our home. And then there's my husband, who over the years has learned exactly what I need when I need it. Just the little things. Knowing that he will be by my side, does make this disgusting process a little less scary.
They say a baby won't fix a relationship, and I entirely stand behind that, but it does make an already loving relationship even greater. Like, it is the greatest. I feel so proud to just walk around the mall with him, and our stroller. Even holding hands just feels greater. Whether I have Endometriosis or not, we get to spend the rest of our lives together, both as a couple and as a family. We get to watch as Boden brings SO much joy to all of our loved ones. And we never have to worry about him being sick, the way I am. Knowing that Boden can never have Endometriosis eases my heart so greatly, knowing what my being sick has done to my parents.
Seeing your child suffer, is far worse then suffering yourself, so I should consider myself lucky, really. I'm not on the bathroom floor yet...I am surrounded by love and people who want to help fix me...I magically have the most beautiful baby, and I never have to watch him suffer through this disease. My glass is actually more then half full.